Growing up, Stanford student Kristen Power watched as her mother was diagnosed with Huntington’s disease and the disease progressively grew worse. Her mother passed away at age 45.
Power knows she has a 50 percent inheriting the disease, which causes certain nerve cells in the brain to waste away and in the end can rob patients of the ability to walk, talk or swallow. Rather than wait for the onset of symptoms, she has decided to complete genetic testing to determine if she carries the Huntington’s disease gene. She plans to chronicle her journey in a documentary and has launched an indiegogo campaign to raise funds for the project.
The above video is footage from the film, which is titled Twitch.
